Paul Crowdey has lost the ability to talk, speak and walk, but he refuses to let this stop him from raising funding and awareness of Motor Neurone Disease as part of his legacy.
Paul, 37, was diagnosed with the disease in January 2015, which breaks down the body’s specialist nerve cells in the brain and spinal cord, resulting in loss of control of important muscle activity.
His mother had also suffered from the illness before she passed away.
Paul lives with his wife George and two daughters Annie, 17, and Emily, seven, in Potterhanworth near Lincoln.
So far Paul has raised £14,268.62 on his JustGiving Page, which will go to the Motor Neurone Disease Association.
Motor neurone disease is a rare condition which affects around two in every 100,000 people in the UK each year.
Motor Neurone Diesease affects:
The aim for Paul and his family is to raise awareness of the disease, which is “severely underfunded in the UK”.
Paul said: “I will fight and be here for as long as I can. With the support of my beautiful wife, my girls and my entire family, we’ll enjoy whatever time I have left.