A family being torn apart has been boosted by the news of £1,000 being raised on the back of an appeal in The Lincolnite.
Disabled children’s charity Newlife said it received an amazing response to the fundraising appeal in The Lincolnite for 17-year-old Dane Rose, who suffers from Cerebral Palsy after his father was denied free access to vital equipment.
Cerebral Palsy affects both Dane’s arms and legs so he can’t walk, dress or feed himself and needs round the clock care. He requires a portable hoist and specialist bed so he can stay at his divorced dad’s home like his young sister does.
Local people were quick to help after the appeal, including the Lincoln Minster Round Table who donated £1,000, but there is still £1,760 left to raise.
Duplicates aren’t funded
Dane, who currently lives with his mother, also has reflux meaning he can choke very easily if he is left in the wrong position. He’s fed through a tube in his tummy and needs a hospital style adjustable bed to support him at an angle.
A portable hoist is also needed to safely move him around the house and into bed, especially as he’s too big for dad, Justin, to lift without causing them both pain.
The NHS provided a ceiling track hoist and bed at his mum’s home, but policy dictates duplicates aren’t funded, preventing Dane staying at his dad’s house.
Dane’s father Justin previously said:“It’s heart-breaking for us all. Dane wants to stay over at my house, just like his nine-year-old sister Torey does, which would also give his mum respite from caring for him round the clock.”
“We immediately wanted to help”
Simon Marsh from Lincoln Minster Round Table said: “When we heard about Dane’s situation we immediately wanted to help.
“Dane’s situation made the decision to donate a simple one. Family is so important, and the money will go towards allowing him to spend more time with his father. His mother will also have time for respite. We encourage other groups and businesses to consider doing the same and support this good cause to make a real difference to Dane’s life.”
Dane is one of 14 children in Lincolnshire right now who desperately need specialist equipment costing £24,171. Any money raised above the total needed for Dane’s specialist equipment will be used to help other disabled and terminally ill children in need in the county.