A Spalding mum is aiming to raise £10,000 so she and her partner can take their son to America for pioneering brain tumour treatment.
Karen Taylor has set up a JustGiving page with the hope of raising the money so her son Kieran can have the proton beam therapy which should mean he will tumour free for at least the next 10 years.
Kieran was diagnosed with a brain tumour in May 2016, with surgeons removing it two days later to save his sight.
The tumour was wrapped round his optic nerve and pituitary gland.
Surgeons managed to remove 95% of the tumour but Kieran has been left with several medical conditions which means he needs to take three different lots of medication at various times in the day.
Kieran’s parents were told in November 2016 that the tumour had remained active and was producing cystic fluid which was building up in his brain.
Doctors have now said that Kieran needs to go to America for proton beam therapy that will mean he should be tumour free for at least 10 years.
Karen Taylor said on their JustGiving page: “Kieran has to take medication every day so his body can cope with stress if he becomes unwell or burns himself or breaks a limb he has to have an emergency cortisone injection which only ourselves and staff at the school he attends have training for.
“He has lost his peripheral vision because of where the tumour was wrapped round his optic nerve.
“We were told after the first operation he might need to have the same operation in five years’ time.
“So imagine our shock when Kieran went for a routine scan in November last year and we were told that the tumour had remained active and was producing cystic fluid which was building up in his brain.
“We have now been told that Kieran needs to go to America for proton beam therapy that will mean he should be tumour free for at least 10 years.
“Without this treatment he will need to keep going into hospital every six to 12 months to have an operation to remove the cystic fluid.
“Our hope is that we can go to America for Kieran to have his treatment then we can get back to some kind of normality for the whole family.”