Grantham girl one of just 50 in the world with rare condition
A Channel 4 special that aims to celebrate the UK’s only mass participation event for people with disabilities will feature a family from Lincolnshire.
At Home Superheroes is an hour long special that will look at six families with disabled children as they aim to complete active lockdown challenges.
The show airs next month and has been inspired by the challenge event of the same name, with celebrities joining the six chosen families on their challenges.
A family from Barrowby, just outside Grantham in Lincolnshire, will be one of the featured teams, known as Team Storm.
The focus is on three-year-old Imogen, who has a very rare condition called 3p25 deletion syndrome.
Imogen Laragy, 3, completing her race in her gait trainer at her home town of Barrowby.
She is one of just 50 people across the world to have the condition, which is a rare chromosomal anomaly that causes epilepsy, ataxia, stereotypic hand movements and intellectual disability.
The family will be challenged to complete 20km however they can, with the event encouraging participants to set their own challenges too.
The event is sponsored by Marvel as part of the Superhero Series, inspiring people to feel like superheroes when doing these challenges.
Sophia Warner, a Paralympian and the event’s founder and organiser, said: “The enthusiasm has been astounding. Many of our participants haven’t even been able to step beyond their front door for months because they’ve been shielding.
“More than anything, this programme shows the superpower of sport and how much it has meant to everyone taking part to stay connected and super-active during this time.”
At Home Superheroes will air on Saturday, August 15 at 8am on Channel 4, presented by Clare Balding.
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