June 30, 2016 5.06 pm
This story is over 89 months old
Afflicted Lincoln man aims to make motor neurone disease awareness his legacy
Paul Crowdey has lost the ability to talk, speak and walk, but he refuses to let this stop him from raising funding and awareness of Motor Neurone Disease as part of his legacy. Paul, 37, was diagnosed with the disease in January 2015, which breaks down the body’s specialist nerve cells in the brain and…
Paul was diagnosed with Motor Neurone Disease in January 2015.
Paul Crowdey has lost the ability to talk, speak and walk, but he refuses to let this stop him from raising funding and awareness of Motor Neurone Disease as part of his legacy.
Paul, 37, was diagnosed with the disease in January 2015, which breaks down the body’s specialist nerve cells in the brain and spinal cord, resulting in loss of control of important muscle activity.
His mother had also suffered from the illness before she passed away.
Paul lives with his wife George and two daughters Annie, 17, and Emily, seven, in Potterhanworth near Lincoln.
So far Paul has raised £14,268.62 on his JustGiving Page, which will go to the Motor Neurone Disease Association.
Paul lives in Lincoln with his wife, George and daughters Annie and Emily. Photo: Paul Crowdey Blog
Motor neurone disease is a rare condition which affects around two in every 100,000 people in the UK each year.
Motor Neurone Diesease affects:
Gripping
Walking
Speaking
Swallowing
Breathing
The aim for Paul and his family is to raise awareness of the disease, which is “severely underfunded in the UK”.
Paul said: “I will fight and be here for as long as I can. With the support of my beautiful wife, my girls and my entire family, we’ll enjoy whatever time I have left.
Paul with wife, George. Photo: Paul Crowdey JustGiving Page
“Unfortunately MND is severely underfunded in the UK and this has to change.
“It’s clear that it doesn’t just affect old people as most people think, it can affect anybody at anytime.
“It also doesn’t just affect the person living with it, it affects all those around us that we care for most.
Photo: Paul Crowdey Blog
“I’m going to meet people this year and when I give up work more people will know about me and see my face. It’s the only way to raise more awareness of this disease.
“I can’t hide at home as that’s the wrong way to go. I’ll get George to move me around and you’ll see us.”
To donate to his cause, visit Paul’s JustGiving Page. People can also follow Paul’s journey on his blog.
The Lincolnite welcomes your views. All comments are reactively-moderated and must obey the house rules. Please stay on topic and be respectful of other readers.
David Beveridge and Jake Keeton both scored tries as Lincoln’s 1st XV completed a league double over local rivals Market Rasen & Louth with a narrow 10-3 home win.
Spen Holvey, who stood in as captain for the injured Jake Pryer, slotted over a penalty to secure a losing bonus point for Market Rasen.
Witnessing the Red Arrows in Lincolnshire and beyond is a thrilling experience for many, with their striking red, white, and blue smoke trails decorating the sky.
Corporal Phil Dye said he has had the “privilege of taking videos and photographs from the backseat of the Red Arrows Hawk T1 aircraft” for just over a year in his role as Visual Communicator for the Red Arrows.